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Newborn genetic screening - Say NO! Here is how, a state-by-state guide. By Sasha Latypova (11/12/25)
Sasha Latypova — with angry words — talks about newborn genetic screening now “required” in all states, and specifically how to refuse it. Be sure to read the article, do your own research, and carefully ask and answer the questions:
Is newborn screening right for my family and my newborn?
Should I refuse newborn screening and its associated surveillance and possible genetic experimentation?
Is it OK not to know about a rare genetic disease that may or may not occur but could hang like a sword of Damocles over the newborn’s head for its entire life?
Summary (Grok ai, edited; image from article)
Sasha Latypova advises against newborn genetic screening in the U.S., describing it as a data collection tool that may misattribute vaccine-related issues to genetic conditions. She provides guidance on refusal methods by state, including forms and legislative updates.
Follow-Up to Previous Article The article follows a prior piece on how genetic testing rebrands vaccine harms; she also references Maria Gutschi's article on mRNA therapeutics in hospitals.
Newborn Screening Overview
All U.S. states require Newborn Screening Process (NBS) shortly after birth, including genetic data collection, based on the federal Recommended Uniform Screening Panel (RUSP).
See Health Resources & Services Administration (HRSA) pages on Newborn Screening Process: tinyurl.com/mr3jvp56
States vary in panels and timelines.
Screening tests exist for over 60 genetic conditions (mostly rare). Example: Congenital hypothyroidism affects roughly 1,000 to 2,000 infants annually in the U.S. This is 0.025% - 0.050% of about 4 million babies born each year.
Case Study: Congenital Hypothyroidism
Congenital Hypothyroidism Symptoms may be asymptomatic or include excessive sleeping, reduced nursing interest, poor muscle tone, low cry, infrequent bowel movements, jaundice, and low temperature.
Historical descriptions date to the 1800s as "cretinism."
Screening became widespread in the 1960s-1970s.
Treatment involves levothyroxine (e.g., Synthroid), the third most prescribed medication in 2023 with over 80 million prescriptions.
Treatment risks and harms include cardiovascular issues, nervousness, heat intolerance, muscle weakness, diarrhea, and menstrual irregularities.
FDA Package insert for Synthroid: tinyurl.com/4jcvtbvr
Advice to Parents Refuse vaccines, vitamin K, RSV shots, genetic screening, and other screenings. Avoid hospitals for birth and care; seek alternative providers.
Refusal Guide
Refusal is possible in most states, varying by grounds (religious or any reason) and paperwork.
Applies mainly to dried blood-spot screen (DBS).
Hearing and Critical Congenital Heart Defects (CCHD) may differ.
Refusal at or before birth, typically requires clinician counseling and documentation.
After screening, some states allow requests for data destruction or limited use. (Do you trust the government to adhere to your requests?)
Religious Grounds-Only States: Examples include CA, TX, NY, GA, OH, OR, UT, WA, SC; use state forms.
Broader Grounds States: Examples include MN, FL, AL; general written refusal accepted.
Downloadable state-by-state guide: Example forms listed for CA, TX, NY, PA, GA, WA, IN, RI, AL, MN. tinyurl.com/yc2khjsa
Checking Current Status Use HRSA "Your State" pages for condition counts and links. State NBS sites publish forms and policies.
HRSA State Screening: newbornscreening.hrsa.g…
Pending Legislation
ED NOTE
For those who oppose H.R. 4709, Stand for Health Freedom offers a petition you can send to your federal representative. Be sure to customize it if you can.
PROTECT PARENTAL RIGHTS AND GENETIC PRIVACY: OPPOSE H.R. 4709 (10/06/25, scroll down for link): Federal: H.R. 4709 (2025) reauthorizes NBS programs.
State-Level:
WV HB 3437: Requires consent for NBS, limits retention.
WI SB 145: Process for adding RUSP conditions.
VA HB 1782: Evaluates new disorders, implements testing.
GA SB 101: Adds Duchenne muscular dystrophy.
FL Sunshine Genetics Act: 5-year pilot for voluntary whole-genome sequencing.
RUSP-alignment laws expected to speed panel growth; genomic pilots may spread; DBS privacy evolving.
