LDN has been a valuable tool for my 20 year old with hEDS. She had tried it once before, but was prescribed a lower dose, I think 2 mg. She's now prescribed 7 mg and finds it helpful. She's still in pain but it's more manageable. Providers do need to validate the pain and intolerances of hEDS patients. And understand and treat it. Thanks for your education and advocacy. It's much appreciated in our community.
Jan 29
at
1:20 PM
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