Julia, you write about this so eloquently. My daughter is a caregiver to a man with advanced ALS. He is probably close to the same age...middle 50s I think. Has college age kids. My daughter and 3 others rotate care. His wife was going down the same path as you and is exhausted...physically and mentally. It's a terribly draining disease..on everyone. If you'd like to connect with Marisa, I can put you in touch. I'm not sure if she could help, but she is very close to her patient...spends nights at their house, has gone on vacation with them, has cared for them (both) for a couple of years now. Just let me know. Laura