Kew: Rare Life at Home & Work 

@katewears
A newsletter about living rare at home and at work, as we seek to find life-saving treatments for our son and the rare community.
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Kew: Rare Life at Home & Work
By Kew: Rare Life at Home & Work
In 2020 our son was diagnosed with a life-threatening rare syndrome and I changed my career to help. Read our story.