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On Wednesday evenings, for most of the last 15 years, i have gotten together with a group of creative women to chat and craft. Some knit, some crochet, some simply come for the conversation and yes, wine.

In 2020, I dropped out. My husband had been diagnosed with ALS, I couldn’t leave him alone and it was rare that my girls could come over midweek. I mostly dropped out though because the “founder” of the group kept chastising me for talking politics. Since its damn near impossible for me to NOT…

Thanks for this Your friends' "conversion" gives me hope. I'm glad you're getting your group back, and condolences on the loss of your husband. ALS is a freaking thief; takes the body as Alzheimer's takes the mind.

Hi Ally, I am not one-upping ALS at all — it is a nightmare all by itself, but MS takes both body and mind, and it is typically much, much slower. The only good thing the sociopath in chief ever did for this country (only because Covid was destabilizing his precious stock market) was the warp speed vaxx program. How I long for such a program for neurological diseases, including spinal cord injuries. Such a program would — as with Covid — mandate sharing information among and between Pharma an…

Sheila, thank you for sharing this with us. It gives me hope for lost friendships with many of my white evangelical friends during the last administration, especially during the racial protest and riots. My heart hurts for your loss of your husband.

Gus, I second everything you shared. My husband of four years was newly diagnosed w/MS when we met 5 years ago, and I was JUST diagnosed last year in March. I asked the neurologist at my clinical exam/initiation appointment after my MRI that showed …

MS doesn't always take the mind. My mother had hers until the end, even though she could hardly do anything with her body.

Not known in my mother's day, but large doses of vitamin D does wonders for a lot of people with MS. Get yourself and your husband docs that know about this. We're talking doses of ***at least*** 10,000 IU/day, which is not unsafe. But part of what you need to know is that physicians of a certain age learned in medical school tht it is VERY easy to get a toxic dose (not tru…

A very belated thank you, David.

Yes, Vit. D was one of the very first of many scripts my neurologist prescribed me since my diagnosis in March 2021.

Last week, I was diagnosed with small fiber neuropathy after a skin biopsy the previous week. I’d been suffering with “burning” feet, ankles, palms, fingertips, arms and legs. Just the touch of a sheet or pants causes pain. The doc wants to reevaluate my Vit D mg amount along with other nutrients/vitamins like Vit B 12.

There is quite a bit of ov…